About Soft Bones UK

Soft Bones UK Hypophosphatasia Foundation was founded by Meryl, mother of Maddox, who was born with Hypophosphatasia (HPP). Although Meryl and her family were supported by various existing charities it soon became apparent that there was very little knowledge about HPP and no specific support group in the UK.

Soft Bones UK’s aids are to raise awareness of HPP, to determine early diagnosis, and to support and advocate those diagnosed with HPP and their families in the UK.

Find out more about our team here.