We are fortunate enough to have Leon Ockenden taking part in a number of events for us to raise awareness and funds for the work we do at Softbones U.K.

Leon says: I’m lucky enough to be generally fit and well-and my fundraising efforts are centred around me pushing myself to my physical limits. I shall be running the London Marathon, cycling 100miles in the ride London event and then running NON STOP for 24hrs at the Equinox m24 event in Leicestershire. If you want to keep up to date with my training and fundraising here are he links to my social media accounts. Please help support me in raising awareness of Hypophosphatasia and donate if you can for Softbones U.K.

If you wish to donate or follow Leon’s story please follow the links below

You can donate to Leon’s effort here